The Barth Syndrome Foundation, together with our affiliates, is a community of families, physicians, scientists, donors and volunteers around the world. As our mission statement says, we are dedicated to saving lives through education, advances in treatment, and finding a cure for Barth syndrome - a sometimes fatal, oftentimes debilitating genetic disease.

Website: barthsyndrome.org

Phone: (855) 662-2784

Cross Streets: Between Parkway St/West Ave and Pine Brook Dr